united kingdom

  1. A

    Charity funding

    Interesting link from Twitter -
  2. Sly Saint

    Guardian - Mental health services in crisis are abandoning patients to meet targets May 2019

    From Recovery in the Bin full article here https://www.theguardian.com/commentisfree/2019/may/14/mental-health-services-crisis-patients-vulnerable-off-rolled?CMP=Share_iOSApp_Other
  3. Andy

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    Open access at https://www.tandfonline.com/doi/full/10.1080/02699052.2019.1607557 The authors claim they are looking at post-concussion syndrome yet So when they report that from this list of symptoms I expect that they are re-labelling people who have an assortment of conditions...
  4. Sly Saint

    UK Parliament debate - 10 Years of the Work Capability Assesment 24 April 2019

    [see thread (with petition) re-amalgamation of testing for both benefits] https://www.s4me.info/threads/dont-merge-the-assessments-for-pip-and-esa-april-2019.9032/ full debate here: https://www.theyworkforyou.com/whall/?id=2019-04-24a.318.4&s=Myalgic+Encephalomyelitis#g324.0
  5. ladycatlover

    BBC1 Doctors 17 April 2019 Storyline about PIP (UK benefit)

    Warning - this may be a programme that is upsetting for PIP claimants, or those awaiting a PIP assessment. On the other hand, it at least shows you how useless the assessors are. But that's really scary, since then you know how little chance to have to get PIP unless you're ready to go through...
  6. Sly Saint

    Don't merge the assessments for PIP and ESA - April 2019

    UK Gov petition (ie at 10,000 Govt will respond) currently 3567 signatures (my addition: if you fail on the one test but were previously in receipt of both benefits, you would effectively be left with nothing, pending appeal.) link here: https://petition.parliament.uk/petitions/244329
  7. Andy

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    https://www.rcplondon.ac.uk/ngc-guideline-development
  8. Sly Saint

    'My horrendous illness leaves me in bed for 20 hours a day' - Hull Daily Mail Mar 2019

    not very well written (a couple of half-quotes that don't make much sense). Also, although it initially says a 'crippling rare illness', at the end it gives the 250,000 UK and 17m figure worldwide........'rare'?? there is also an instant poll to identify if readers are ME sufferers/know...
  9. Binkie4

    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the whole of her question - sound was off and I had to quickly turn it up- but Prime Minister answered something to the effect that she wasn’t aware of...
  10. large donner

    Steve Brine Health minister resigns

    BBC just reporting Brine has resigned.
  11. It's M.E. Linda

    ME Debate Jan2019 - UK ONLY -Steve Brine MP

    Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health and Social Care.....things are changing so rapidly in UK Govt). There has been a disappointing response to her Twitter and Facebook requests. so I am...
  12. Andy

    Sense about Science UK: Become an Ask for Evidence ambassador

    http://askforevidence.org/articles/ask-for-evidence-ambassador-launch
  13. TiredSam

    UK Vulnerable patients at great risk under new laws - Law Society press release

    https://www.lawsociety.org.uk/news/press-releases/vulnerable-people-at-great-risk-under-new-laws/
  14. Andy

    UK: Guess who's working on a health data-slurping digital tool? DWP, 2019, Hill

    https://www.theregister.co.uk/2019/02/19/dwp_health_data_tool/ Also a blog on the subject https://universalcreditsuffer.com/2019/02/26/dwp-designing-tool-to-trawl-claimants-medical-records/
  15. Sly Saint

    MUS services in UK and other MUS related issues

    As increasingly pw ME/CFS are being referred through IAPT for treatment as MUS I thought I'd set up a separate thread from the ME/CFS Services in UK. " Medically Unexplained Symptoms: Primary Care Intervention University of Sheffield Subject Experts Professor Peter White is Professor of...
  16. S

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    Ugh. Have you seen this new piece @dave30th ? "Conclusions mFND patients have distinct demographic characteristics compared with psychiatric controls. Experiences of abuse appear to be equally prevalent across psychiatric patient groups. This study establishes the socio-demographic and life...
  17. Sly Saint

    MYRIAD - My Resilience in Adolescence project UK

    http://myriadproject.org/myriad-project/ http://myriadproject.org/ The MYRIAD collaboration: Kings College London, University of Oxford, University of Exeter, MRC; Cognition and Brain sciences unit, University of Cambridge, UCL, Wellcome. see also: Mindfulness Training in UK Secondary Schools...
  18. Andy

    UK: Psychological tyranny prescribed by the DWP: preventable harm is government policy, 2018, Stewart

    https://bjgp.org/content/68/677/579
  19. Sly Saint

    Academy of Medical Sciences - UK

    I had not heard of this 'charity' before. https://acmedsci.ac.uk/ Unfortunately Simon Wessely is also connected and frequently takes part in their events. But, just maybe there are people who might be able to give a really 'independent' objective review of PACE and related issues? eg...
  20. S

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922
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