united kingdom

  1. Andy

    United Kingdom: Invest in ME news

    January 2020 newsletter, https://mailchi.mp/8debd4b3d287/supporting-biomedical-research-into-me-this-christmas-1235507
  2. Sly Saint

    UK - £58.7 million funding boost for research to protect the health of the nation Jan 2020

    https://www.nihr.ac.uk/news/new-587-million-funding-boost-for-research-to-protect-the-health-of-the-nation/23835
  3. Sly Saint

    Anxiety and depression – new report 2020

    The National Clinical Audit of Anxiety and Depression (NCAAD) has published a new report following an audit of psychological therapies provided in secondary mental health care settings...
  4. Sly Saint

    Lincolnshire County Council; Children's social care 2020

    Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2
  5. NelliePledge

    UK All Party Parliamentary Group being reactivated - 2020

    Just posted by ME Association Asking people to contact their MPs to ask them to join. https://www.meassociation.org.uk/2020/01/the-all-party-parliamentary-group-on-me-to-re-convene-please-invite-your-mp-to-attend-09-january-2020/
  6. Sly Saint

    Article: Huge rise in fibromyalgia in the Grimsby area - 28 Dec 2019

    https://www.grimsbytelegraph.co.uk/news/health/huge-rise-fibromyalgia-grimsby-area-3686208
  7. Sly Saint

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales http://www.senedd.assembly.wales/mgIssueHistoryHome.aspx?IId=26835&Opt=0 Research brief http://www.senedd.assembly.wales/documents/s96850/Research Brief.pdf My comments on the above: Don't...
  8. Dolphin

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    Source: Value in Health Vol 22, Suppl #3, p S909 Date: November 2019 URL: https://www.sciencedirect.com/science/article/pii/S1098301519350491 https://www.valueinhealthjournal.com/article/S1098-3015(19)35049-1/abstract Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue...
  9. Hoopoe

    The country that closed its psychiatric hospitals

    https://members.tortoisemedia.com/2019/12/16/country-that-closed-its-mental-health-institutions-ian-birrell/content.html
  10. ringding

    MEAction: How did your local service perform?

    MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a link to the full report on the forum but just in case, it can be found here...
  11. R

    NICE ME/CFS draft guideline - publication dates and delays 2020

    https://www.nice.org.uk/guidance/indevelopment/gid-ng10091
  12. Sly Saint

    Article: Tesco launch sunflower lanyard scheme to help shoppers with hidden disabilities Dec 2019

    https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)
  13. Andy

    UK: Mentally ill 'spend months on hidden waiting list'

    https://www.bbc.co.uk/news/health-50658007
  14. Andy

    UK: Chronic Illness Inclusion Project poll: What should be done about Universal Credit?

    https://docs.google.com/forms/d/e/1FAIpQLScJ5IipE8NAu5OvIjiqD75a-YE_YTnqVJnDriHadOi10MyY6A/viewform
  15. Sly Saint

    UK - Nominate someone for an honour or award (honours list)

    https://www.gov.uk/honours (Was going to put in the title but wanted to gauge opinion) suggest Jane Colby (TYMEs trust) eta: thought of JC because it might highlight what has been happening re children and parents being persecuted for FII; the last question Carol Monaghan managed to raise in...
  16. Andy

    ME [briefly] in University of East Anglia Video

    Highlighted in the December Invest in ME newsletter. https://youtu.be/m9D_-zAr2-Y
  17. Suffolkres

    Top research priorities in healthcare-associated infection in the UK, 2019, Wilson et al.

    Sent to me by very supportive patient advocate for ME and CFS in Norfolk for nearly 40 years Dr Patrick Thompson ! "There is a mismatch between research questions which are considered to be important by patients, carers and healthcare professionals and the research performed in many fields of...
  18. Dolphin

    "Salus Fatigue Foundation marks 10-year milestone with national roll out" (in UK)

    https://bdaily.co.uk/articles/2019/11/20/midlands-fatigue-charity-marks-10-year-milestone-with-national-roll-out
  19. Andy

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    An ME/CFS workshop has been announced by the MRC and NIHR. https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/#workshop Statement from Stephen Holgate on behalf of the CMRC Statement from CureME Biobank Team FAQ from the ME/CFS...
  20. MeSci

    Brain illness spread by ticks has reached UK

    https://www.bbc.co.uk/news/health-50206382 Brain illness spread by ticks has reached UK By Michelle Roberts Health editor, BBC News online An infectious disease that can harm the brain and is spread to people by tick bites has been identified in ticks in the UK for the first time. Public...
Back
Top Bottom