united kingdom

Just been hearing about this: https://www.bbc.co.uk/news/uk-england-birmingham-51369881 Can't find the direct quote but apparently the inquiry also said that he should have been suspended while the inquiry was ongoing, not allowed to continue with his malpractice. relevent for pwME as...

January 2020 newsletter, https://mailchi.mp/8debd4b3d287/supporting-biomedical-research-into-me-this-christmas-1235507

https://www.nihr.ac.uk/news/new-587-million-funding-boost-for-research-to-protect-the-health-of-the-nation/23835

The National Clinical Audit of Anxiety and Depression (NCAAD) has published a new report following an audit of psychological therapies provided in secondary mental health care settings...

Eligibility https://www.lincolnshire.gov.uk/special-educational-needs-disabilities-send/childrens-social-care-1/2

Just posted by ME Association Asking people to contact their MPs to ask them to join. https://www.meassociation.org.uk/2020/01/the-all-party-parliamentary-group-on-me-to-re-convene-please-invite-your-mp-to-attend-09-january-2020/

https://www.grimsbytelegraph.co.uk/news/health/huge-rise-fibromyalgia-grimsby-area-3686208

07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales http://www.senedd.assembly.wales/mgIssueHistoryHome.aspx?IId=26835&Opt=0 Research brief http://www.senedd.assembly.wales/documents/s96850/Research Brief.pdf My comments on the above: Don't...

Source: Value in Health Vol 22, Suppl #3, p S909 Date: November 2019 URL: https://www.sciencedirect.com/science/article/pii/S1098301519350491 https://www.valueinhealthjournal.com/article/S1098-3015(19)35049-1/abstract Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue...

https://members.tortoisemedia.com/2019/12/16/country-that-closed-its-mental-health-institutions-ian-birrell/content.html

MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a link to the full report on the forum but just in case, it can be found here...

https://www.nice.org.uk/guidance/indevelopment/gid-ng10091

https://www.edinburghlive.co.uk/news/uk-world-news/tesco-sings-up-sunflower-lanyard-17367389 (could be good but not sure it will be that discreet if everyone knows what it stands for)

https://www.bbc.co.uk/news/health-50658007

https://docs.google.com/forms/d/e/1FAIpQLScJ5IipE8NAu5OvIjiqD75a-YE_YTnqVJnDriHadOi10MyY6A/viewform

https://www.gov.uk/honours (Was going to put in the title but wanted to gauge opinion) suggest Jane Colby (TYMEs trust) eta: thought of JC because it might highlight what has been happening re children and parents being persecuted for FII; the last question Carol Monaghan managed to raise in...

Highlighted in the December Invest in ME newsletter. https://youtu.be/m9D_-zAr2-Y

Sent to me by very supportive patient advocate for ME and CFS in Norfolk for nearly 40 years Dr Patrick Thompson ! "There is a mismatch between research questions which are considered to be important by patients, carers and healthcare professionals and the research performed in many fields of...

https://bdaily.co.uk/articles/2019/11/20/midlands-fatigue-charity-marks-10-year-milestone-with-national-roll-out

An ME/CFS workshop has been announced by the MRC and NIHR. https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/#workshop Statement from Stephen Holgate on behalf of the CMRC Statement from CureME Biobank Team FAQ from the ME/CFS...