united kingdom

This thread has been created by merging several threads on social prescribing BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19 https://www.bbc.co.uk/news/health-46999922

This thread has been formed by merging several threads This discussion has been split from this thread Edit November 2024, this thread has been renamed to reflect changes in areas served. UK campaign for better ME services in Suffolk and Norfolk Exactly DT, in 2009, we convincingly proved...

Steve Brine's Troubling Claim in Parliamentary Debate on ME I want to focus on a point Brine made regarding the importance of including updated information about ME in medical education—one of the key planks in the motion passed by unanimous voice vote on Thursday.

Moderator note: This post has been copied to create a new thread on the day of the debate. The thread on preparations for the debate is here Ways to watch live; https://parliamentlive.tv/Commons https://www.bbc.co.uk/iplayer/live/bbcparliament (UK only) (The BBC Parliament channel can also be...

Carol Monaghan Scores Another Parliamentary Debate "Carol Monaghan, a member of Parliament from the Glasgow area, has done it again. This week she is spearheading a three-hour debate in the House of Commons about the awful situation confronting ME patients in the UK. (The organizers of this...

This post and the following ones have been moved from this thread.

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

Hi all, Looking for some advice given it's possible I may have to go down the route of claiming benefits. First a little about me: I'm a single 31 y/o who will soon be living alone in a flat. I have savings but these fall under the limit over which you can't claim certain benefits. I am mild...

"Disabled people will be able to work with a dedicated key worker to get and stay in employment, the new Work and Pensions Secretary Amber Rudd has announced today." Re the 'light touch' reviews, I'll believe it when I see it. (this may explain why the DWP were so interested to know about...

I didn’t know where to post this I just did a bit of easy research on charity incomes via http://beta.charitycommission.gov.uk/charity-search/ It allows you to type in charities to see their most recent annual income. Most illnesses have one or two main charities so I don’t include all the...

Taken from a blog originally from 2011 but the comments go on to 2018; other comments: in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student): full blog here...

Another date for our diary, Esther Crawley confirmed as a speaker at the European Society for Paediatric Infectious Diseases (ESPID) later this year: http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.WkuWyJCnzMI

:woot::woot::woot::woot::woot::woot::woot::woot: Thanks to all those who've long researched and written about PACE - it's those many, many years of work by patients such as @Tom Kindlon and others who spotted the problems from the get-go, and the support of academics such as @dave30th David...

Article is about charities in general. Thought I would post as I found it interesting. https://www.theguardian.com/society/2018/nov/20/charities-risk-becoming-irrelevant-warns-new-report

Interesting from Twitter. It seems a mental health conference did not go down well Some aspects may sound familiar. I have not dug very deeply, but it seems UK mental health initiatives are not universally appreciated deeplys://www.magonlinelibrary.com/doi/10.12968/bjmh.2018.7.5.198

https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/news-parliament-2017/my-science-inquiry-launch-17-19/ The Committee are asking people in the science community to submit topics that they think the committee should look into. 200 word...

Moderator note This post has been copied from this thread and subsequent posts moved across. I think it was the BACME response to NICE that said only 8,000 ME patients use the NHS clinics. That's only 3.2% of the estimated 250,000 ME patients nationwide (or 6.4% if the number was actually only...

Copied post South Tees NHS The CFS service Group Rehabilitation Programme for people with CFS / ME https://www.southtees.nhs.uk/content/uploads/Session-1-2017.pdf as long as this sort of stuff is peddled, asking for more ME/CFS services is maybe asking for more of the same(?)

" A disabled woman from Thamesmead has started a petition to stop people on benefits having to travel so far for assessments. Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She...