united kingdom

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...

Shocking but perhaps not unexpected Check out @MrTopple’s Tweet:

" Increases in life expectancy in the UK have stalled and the slowdown is one of the biggest among 20 of the world's leading economies, ONS data shows. Rises in life expectancy dropped from 12.9 weeks per year for women from 2006 to 2011 to 1.2 weeks per year from 2011 to 2016, its report...

Not sure if this has been posted anywhere. The link was included in one of the comments on David Tullers latest blog about Mayo. " The Guideline Process The National Institute for Health and Care Excellence Surveillance report 2017 - Chronic fatigue syndrome/myalgic encephalomyelitis (or...

https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting here. I can’t see much else in significant developments. Another BACME member is involved. Dr Louis nacul was there as an observer. Mainly a...

'They' seem to be taking Lyme more seriously (?) https://www.gov.uk/guidance/lyme-disease-differential-diagnosis

Just came upon this, published 10 May 2018: https://sandwellandwestbhamccg.nhs.uk/publications/harmonised-treatment-policies/1713-draft-policy-for-treatment-of-cfs-me-engagement-09-05-2018/file Their public engagement page says that the time for commenting has passed, so maybe not worth posting...

This is being reported in a lot of places. Here is Sky News: " Senior doctors will be able to prescribe cannabis-based medicines in the UK later this year after the government agreed to ease a ban. Home Secretary Sajid Javid announced the decision while admitting the current law is "not...

As you may recall Suffolk NHS have begun to commission care from Dr Nacul (who leads the ME Biobank team at LSHTM) but commissioners from Norfolk and Waveney could not agree on a way forward. Norfolk patients are understandably unhappy about this. There is an article in today's Eastern Daily...

http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/

This is initially on a limited basis with referral via the GP. Posted on the service development website here http://nandsme.blogspot.com/2018/07/dr-luis-nacul-internationally-respected.html?m=1

saw this on the news last night.......I had no idea this was going on in the UK. "Plans to ban 'gay conversion therapy' By Laura Bundock, political correspondent Gay conversion therapies which try to "cure" people's sexuality will be banned as part of the government's LGBT action plan. The...

This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

Continues at http://wames.org.uk/cms-english/2018/06/timeforunrestwales-the-cabinet-secretary-for-healths-plans-for-me-cfs/

Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...

Email from NICE. NICE consultation page is here, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/consultation/html-content-3 and direct link to the draft scope is https://www.nice.org.uk/guidance/GID-NG10091/documents/draft-scope-2 NICE committee recruitment page is here...

http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport