united kingdom

  1. A

    Benefit related deaths

    Shocking but perhaps not unexpected Check out @MrTopple’s Tweet:
  2. Sly Saint

    UK among worst for life expectancy rises

    " Increases in life expectancy in the UK have stalled and the slowdown is one of the biggest among 20 of the world's leading economies, ONS data shows. Rises in life expectancy dropped from 12.9 weeks per year for women from 2006 to 2011 to 1.2 weeks per year from 2011 to 2016, its report...
  3. Sly Saint

    What Can We Expect from the Current Review of NICE Guideline CG53 - Nancy Blake

    Not sure if this has been posted anywhere. The link was included in one of the comments on David Tullers latest blog about Mayo. " The Guideline Process The National Institute for Health and Care Excellence Surveillance report 2017 - Chronic fatigue syndrome/myalgic encephalomyelitis (or...
  4. C

    CMRC minutes from July. Countess of Mar has joined CMRC representing Forward ME

    https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting here. I can’t see much else in significant developments. Another BACME member is involved. Dr Louis nacul was there as an observer. Mainly a...
  5. Sly Saint

    Gov.uk - Public Health England - Guidance Lyme disease: differential diagnosis

    'They' seem to be taking Lyme more seriously (?) https://www.gov.uk/guidance/lyme-disease-differential-diagnosis
  6. Esther12

    [Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

    Just came upon this, published 10 May 2018: https://sandwellandwestbhamccg.nhs.uk/publications/harmonised-treatment-policies/1713-draft-policy-for-treatment-of-cfs-me-engagement-09-05-2018/file Their public engagement page says that the time for commenting has passed, so maybe not worth posting...
  7. Sly Saint

    UK: Medicinal cannabis on prescription

    This is being reported in a lot of places. Here is Sky News: " Senior doctors will be able to prescribe cannabis-based medicines in the UK later this year after the government agreed to ease a ban. Home Secretary Sajid Javid announced the decision while admitting the current law is "not...
  8. Daisy

    Article in today's Eastern Daily Press about the differences in care for ME patients in Norfolk and Suffolk

    As you may recall Suffolk NHS have begun to commission care from Dr Nacul (who leads the ME Biobank team at LSHTM) but commissioners from Norfolk and Waveney could not agree on a way forward. Norfolk patients are understandably unhappy about this. There is an article in today's Eastern Daily...
  9. Indigophoton

    David Tuller: Trial By Error: My Letter to Parliament’s Science and Technology Committee

    http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/
  10. Daisy

    Dr Nacul to provide care for moderate and severe patients in Suffolk

    This is initially on a limited basis with referral via the GP. Posted on the service development website here http://nandsme.blogspot.com/2018/07/dr-luis-nacul-internationally-respected.html?m=1
  11. Sly Saint

    Gay conversion therapy

    saw this on the news last night.......I had no idea this was going on in the UK. "Plans to ban 'gay conversion therapy' By Laura Bundock, political correspondent Gay conversion therapies which try to "cure" people's sexuality will be banned as part of the government's LGBT action plan. The...
  12. Barry

    UK: Strategies for contacting your MP about PACE, NICE and a parliamentary debate.

    This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...
  13. Andy

    Member comments wanted: Third section (What the guideline will cover) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  14. Andy

    Member comments wanted: Second section (Who the guideline is for) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  15. Andy

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...
  16. Indigophoton

    Wales, UK: WAMES: the Cabinet Secretary for Health’s plans for ME & CFS

    Continues at http://wames.org.uk/cms-english/2018/06/timeforunrestwales-the-cabinet-secretary-for-healths-plans-for-me-cfs/
  17. Sasha

    Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

    Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...
  18. Andy

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Email from NICE. NICE consultation page is here, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/consultation/html-content-3 and direct link to the draft scope is https://www.nice.org.uk/guidance/GID-NG10091/documents/draft-scope-2 NICE committee recruitment page is here...
  19. T

    House of Commons Library: Myalgic Encephalomyelitis treatment and research. Debate pack. (June 2018)

    http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport
  20. Sly Saint

    Media articles on Westminster debate June 2018

    For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...
Back
Top Bottom