Hope this is the right place to put this, and that it's not a repeat:
Station: Cornell University
Date: April 28, 2019
WebTV:
https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_BetsyKeller.mp4
Rem: NIH Accelerating Research on ME/CFS meeting
Item: Betsy Keller
(Just copying from...
"Dr. Rosamund Vallings Talks
The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...
Another one from the symposium that I found interesting - https://mecfsconference.org.au/videos/paulfisher/
Final slide to give an idea of the contents of the presentation.
You may recall when ME Action Network started there were mentions of ACT UP. This was the campaign in the 1980s by the LGBT community to get more research into AIDS (mainly in the US)
There was a documentary made around 2012 called United in Anger and it's available on YouTube.
The programme...
Copy and paste link
https://youtu.be/8WlTkH_Wnsg
Quite nice timing. I'm due to, finally, do my Q&A with Sadie later this month, if this video inspires a question you'd like me to ask her then add it to this thread...
Transcript:
BBC Today Programme March 2019 (clip)
An Oxford professor has stopped his work on chronic fatigue syndrome also known as ME because he says he's faced a barrage of online abuse from patients and campaigners.
Some context… (slide)
Over 80 Charities are opposed to his treatments...
Leonard Jason’s 2017 presentation to the Ethical Humanist Society of Chicago regarding myths regarding ME and CFS.
https://www.leonardjason.com/myths-about-me-and-cfs/
@Cheshire (to add to your thread)
Taken from another thread.
@Hole Ousia
"At this afternoon session Professor Michael Sharpe said: “. . . we live in the greatest of times . . . Mental Health is the rage. This is BOOM time! We have a PRODUCT that is selling like hotcakes everywhere. How are we going to make enough PRODUCT?”...
Interestingly, when I did my usual "ME/CFS" google search in past 24 hours, it came up near the top of the first page:
A neat counterpoint to the Gupta guff.
The Irish Times: Chronic fatigue syndrome - A comic by Rosa Devine
Rosa Devine was a ‘strong and fit’ teen when chronic fatigue syndrome took over her life
Article also has a 5-minute video with an interview with Rosa Devine.
Taken from a blog originally from 2011 but the comments go on to 2018;
other comments:
in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student):
full blog here...
"In memory of Anne we decided to release the tribute to her from last year’s IIMEC13 conference DVD, that occurred prior to the inaugural Anne Ortegren Memorial Lecture.
Here, quite appropriately, a distinguished Swedish scientist – Professor Jonas Blomberg – spoke of Anne –"
full text and...
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