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  1. MeSci

    Betsy Keller in NIH Accelerating Research on ME/CFS meeting

    Hope this is the right place to put this, and that it's not a repeat: Station: Cornell University Date: April 28, 2019 WebTV: https://neuroimmune.cornell.edu/videos/NIH_ME-CFS_April2019_BetsyKeller.mp4 Rem: NIH Accelerating Research on ME/CFS meeting Item: Betsy Keller (Just copying from...
  2. Sly Saint

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    "Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...
  3. Andy

    Video, Emerge Symposium 2019: Dr Paul Fisher, Specific Mitochondrial Respiratory Defects & Compensatory Changes in ME/CFS Patient Cells

    Another one from the symposium that I found interesting - https://mecfsconference.org.au/videos/paulfisher/ Final slide to give an idea of the contents of the presentation.
  4. Estherbot

    ACT UP documentary, United in Anger, 2012

    You may recall when ME Action Network started there were mentions of ACT UP. This was the campaign in the 1980s by the LGBT community to get more research into AIDS (mainly in the US) There was a documentary made around 2012 called United in Anger and it's available on YouTube. The programme...
  5. Andy

    Solve ME/CFS Initiative: Webinar, "Paths Forward in Research and Advocacy: Reflections on the 2019 NIH ME/CFS Conference", 25th April 2019

    Register at https://register.gotowebinar.com/register/6221975071436912643
  6. Andy

    ME/CFS Alert, Episode 106: Interview with Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

    Copy and paste link https://youtu.be/8WlTkH_Wnsg Quite nice timing. I'm due to, finally, do my Q&A with Sadie later this month, if this video inspires a question you'd like me to ask her then add it to this thread...
  7. R

    Daily blood draw ME/CFS study suggests important subgroups. Younger 2017 video.

    Very good CFS researcher talks about changes in the body in relation to fatigue.
  8. Kalliope

    Update from Ron Davis April 2019 Interview with BenH

  9. Adam pwme

    Response to Michael Sharpe’s claims of harassment

    Transcript: BBC Today Programme March 2019 (clip) An Oxford professor has stopped his work on chronic fatigue syndrome also known as ME because he says he's faced a barrage of online abuse from patients and campaigners. Some context… (slide) Over 80 Charities are opposed to his treatments...
  10. Sly Saint

    Myths about ME and CFS - Leonard Jason’s 2017 presentation

    Leonard Jason’s 2017 presentation to the Ethical Humanist Society of Chicago regarding myths regarding ME and CFS. https://www.leonardjason.com/myths-about-me-and-cfs/ @Cheshire (to add to your thread)
  11. Sly Saint

    Hole Ousia - it's Boom time! - Michael Sharpe

    Taken from another thread. @Hole Ousia "At this afternoon session Professor Michael Sharpe said: “. . . we live in the greatest of times . . . Mental Health is the rage. This is BOOM time! We have a PRODUCT that is selling like hotcakes everywhere. How are we going to make enough PRODUCT?”...
  12. Andy

    Blog: The real reason I’ve stopped writing for The Canary? Watch this video. by Steve Topple

    https://mrtopple.com/2019/03/07/the-real-reason-ive-stopped-writing-for-the-canary-watch-this-video/
  13. Barry

    The PACE Trial and why CFS-patients don't get treatment - David Tuller interview

    Interestingly, when I did my usual "ME/CFS" google search in past 24 hours, it came up near the top of the first page: A neat counterpoint to the Gupta guff.
  14. E

    Boy said to have 'CFS/ME' interviewed on BBC's 'The One Show' 26/02/2019

    ME was mentioned on The One Show on Tuesday – it’s on YouTube at - - starting at 22.27 minutes in. Don't shoot the messenger!
  15. Kalliope

    The Irish Times: Chronic fatigue syndrome - A comic by Rosa Devine

    The Irish Times: Chronic fatigue syndrome - A comic by Rosa Devine Rosa Devine was a ‘strong and fit’ teen when chronic fatigue syndrome took over her life Article also has a 5-minute video with an interview with Rosa Devine.
  16. Cheshire

    CDC/Medscape - Chronic Fatigue Syndrome: It's Real, and We Can Do Better Elizabeth Unger

    Video published today https://www.medscape.com/viewarticle/908622?src=rss
  17. Andy

    World ME Alliance, was previously IAFME: International Alliance for ME

    Merged thread https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/
  18. Sly Saint

    Dr Gabrielle Murphy - UK BPS ME/CFS doctor

    Taken from a blog originally from 2011 but the comments go on to 2018; other comments: in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student): full blog here...
  19. Sly Saint

    Anne Örtegren - A Year On : Invest in ME

    "In memory of Anne we decided to release the tribute to her from last year’s IIMEC13 conference DVD, that occurred prior to the inaugural Anne Ortegren Memorial Lecture. Here, quite appropriately, a distinguished Swedish scientist – Professor Jonas Blomberg – spoke of Anne –" full text and...
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