USA: News from the Bateman Horne Center

[ahimsa]

This is on August 19.

OOOPS!

Thanks! Fixed now.

 

[Robert 1973]

An AI Map of a Puzzling Illness

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is notorious for its complexity: a disabling illness marked by crushing fatigue, post‑exertional malaise, pain, cognitive fog…

batemanhornecenter.org

An AI Map of a Puzzling Illness: How BioMapAI Tries to Decode ME/CFS, One Symptom at a Time​

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is notorious for its complexity: a disabling illness marked by crushing fatigue, post‑exertional malaise, pain, cognitive fog, sleep problems, orthostatic intolerance, and more, often persisting for a lifetime, without a clear biological fingerprint. Despite years of suffering, people with this condition have heard the same refrain: “Your labs are normal.”

A new study in Nature Medicine, with contributions from BHC’s Lucinda Bateman, MD, and Suzanne Vernon, PhD, challenges that narrative. Researchers built BioMapAI, an artificial intelligence model trained on one of the most detailed ME/CFS datasets ever collected, to map how the immune system, gut microbiome, and metabolism interact—and how those systems relate to what patients feel day to day.

Instead of searching for a single “smoking gun,” the study takes a systems approach, revealing that ME/CFS is not one broken part but a network out of balance.

 

[Trish]

Thread on the research.

 

[Dolphin]

I found their severeMEday posts on Threads. They were either not posted to X or maybe only as story posts like they were on Facebook which only last 24 hours.

 

[ahimsa]

I found their severeMEday posts on Threads. They were either not posted to X or maybe only as story posts like they were on Facebook which only last 24 hours.

Is Bateman Horne still using X a lot? I can't tell because without an account (not logged in to X) when I go to someone's X profile I can't see all the latest posts. There is one pinned tweet from May but the next post I can see from them is from 2023.

Anyway, here's what they posted on Bluesky, in case it's helpful:

In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard.
#SevereME @openmedf.bsky.social @solveme.bsky.social @meactnet.bsky.social

Spoiler: Bluesky Post

I didn't post this on the Severe ME thread since the statement from Solve ME (on their website) talked about the #UnitedForME hashtag and gave more information.

 

[Dolphin]

Is Bateman Horne still using X a lot? I can't tell because without an account (not logged in to X) when I go to someone's X profile I can't see all the latest posts. There is one pinned tweet from May but the next post I can see from them is from 2023.

Anyway, here's what they posted on Bluesky, in case it's helpful:

Spoiler: Bluesky Post

I didn't post this on the Severe ME thread since the statement from Solve ME (on their website) talked about the #UnitedForME hashtag and gave more information.

They post a similar number of their own posts on X as on Bluesky. But they re-post more (of other people’s posts) on X than on Bluesky.

 

[Yann04]

I dont know if they are aware that free apps like Buffer exist and can be used to post on all three platforms simultaneously.

 

[ahimsa]

They post a similar number of their own posts on X as on Bluesky. But they re-post more (of other people’s posts) on X than on Bluesky.

Thanks for the info. That re-post pattern (or re-tweet/boost/whatever) implies that their social media person is on X more often than on Bluesky.