solve mecfs initiative

See Also: Which ME/CFS charity would you donate to right now for biomedical research? And: What are the best UK charities for ME? Following my receipt of a 50 USD charity gift card in a giveaway which only works with US Charities, I am left wondering what charity to spend it on. In the list of...

full article https://www.openaccessgovernment.org/creating-a-research-home-for-me-cfs-long-covid-and-others/184620/

Solve M.E. Patient and Caregiver Resource Guide: Post Exertional Malaise (PEM) and Rest https://solvecfs.org/wp-content/uploads/2021/09/PEM-REST-Combined.pdf A shorter version of this was in their latest e-newsletter...

Date & Time : Fri, Jun 16 5:00 PM - 7:00 PM **Events may have been canceled or postponed. Please contact the venue to confirm the event. https://www.independent.com/events/movie-screening-movie-about-m-e-long-covid-event/

https://www.facebook.com/watch/live/?ref=notif&v=1035058573855146&notif_id=1663261575366605&notif_t=live_video I've only watched part as I'm doing it in sections. It's a lot of slides and talking. I've yet to get to the 'suggestions' bit where it is something I don't know as they are sensibly...

The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and Related Diseases: A Protocol for the You + ME Registry Research Platform. Abstract ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) is a chronic, complex...

From a Solve ME email (https://go.solvecfs.org/webmail/192652/244768601/8421fba22dceaa57b85acf39456eef77182e5a5b928514a03a2c9a7fa8ca8530) Webinar for Researchers “CDMRP for ME/CFS: Navigating the Grant Application Process”, 21st April 2022 The FY22 Defense Appropriation provides funding to...

https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

In this episode Oved Amitay, who is the new CEO of the Solve ME/CFS Initiative and a pharmacologist by training, talks about the organization's research into the underlying causes of ME/CFS through the Ramsey Grant Program, and its data registry -- which he calls "a resource pool at the Solve...

The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 - SMCI Welcomes Two New Members to Its Board of Directors Page 6 - What’s in a Definition? Finding a Common Language for ME/CFS Page 8 - PEM: It’s Time...

Solve M.E. Spearheads “Long COVID Alliance” to Accelerate Post-Infectious Research From a Solve email. Today, Solve M.E. warmly welcomes 50 new partners in the fight to return millions of Americans to health. The Long COVID Alliance, launched by Solve M.E., is a network of patient-advocates...

https://solvecfs.org/applying-for-a-grant/

From an email from Solve. Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined...

I found the following announcement at the bottom of this page - https://solvecfs.org/finding-resources-and-creating-opportunity-2020-me-cfs-federal-advocacy-report/ - and thought it deserved its own thread.

https://solvecfs.org/finding-resources-and-creating-opportunity-2020-me-cfs-federal-advocacy-report/

Register here, https://register.gotowebinar.com/register/6393499997621332750

https://youtu.be/_QqjvWrflmw

From an email from Solve. >>>>> The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. To protect the health of our advocates and congressional representatives, ME/CFS Advocacy Week 2021 will remain virtual with remote access to all...

Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078 I wanted a bit more info so I searched their website and found this (scroll down past the invisible disabilities week info)...